Tag Archives: Medulloblastoma

Sebuah Pengalaman Tumor Otak Anak

Saya jumpa postingan berikut pas blogwalking, ada di form komentarnya blog http://blooders.multiply.com. Saya hanya menuliskan ulang di blog ini karena Kakak (8,5 th) juga meninggal karena tumor otak (medulloblastoma) dalam usia yang hampir sama dengan Hilmy (8 th). Sebagai pengingat n berbagi, juga tau ternyata tanda-tanda tumor otak ini bisa beragam. Saya ingin bisa seperti Bp Imam Suhadi ini yang runtut menuliskan kenangan n kronologisnya, namun masih belumlah sanggup hati ini. Meski saya juga bercucuran air mata membaca kronologis dari Bp Imam di bawah ini tentang putranya, namun semoga tak mengapa, siapa tahu berguna bagi ortu lain yang mengalami … Selanjutnya

Antara AVM dan Medulloblastoma (Mengenang Kakak)

Membaca email salah satu teman milis membuat saya terhenyak n teringat lagi dengan almarhum Kakak yang telah dipanggil 1,5 tahun lalu, dengan diagnosa akhir tumor otak. Ternyata beda tipis antara tumor otak n AVM, so waspadalah terhadap gejala apapun itu bila ada di diri ananda.

Sekedar berbagi, namun ringkas saja (kalo kepanjangan saya belum sanggup). Berbagi dengan maksud agar bisa diambil manfaatnya buat teman lain. Mohon tidak bertanya juga lebih lanjut karena bagi kami sendiri apa penyebab meninggalnya anak saya, belum pasti. Tumor otak-kah or AVM?

Kakak waktu itu langsung muntah-muntah hebat di pagi hari n mengeluh pusing, tidak sanggup … Selanjutnya

Prognosis

Sumber: www.abta.org

Prognosis

How well a patient responds to treatment is affected by their age at the time of diagnosis; the size and extent of the tumor; the amount of mass that can be removed safely; and the level of metastatic disease (the M stage). Overall, the Central Brain Tumor Registry of the United States reports about 65% – 70% of adults (age 20+) with medulloblastoma are alive at 5 years following diagnosis. It is important to realize these statistics do not reflect differences in outcome between low risk and high risks groups (since high risk groups may not do Selanjutnya

Recurrence

Sumber: www.abta.org

Recurrence

Tumors recur when all the tumor cells cannot be removed by surgery or killed by other treatments. In children, medulloblastoma tends to “seed” or drop tumor cells into the spinal fluid. These cells can give rise to tumor growth in the spine. This type

of spread may or may not be accompanied by tumor regrowth in the cerebellum. In adults, the tumor tends to first regrow in the cerebellum. On very rare occasions, the tumor may spread elsewhere in, and outside, of the central nervous system.

Recurring medulloblastoma is treated aggressively with repeated surgery, re-irradiation if possible, Selanjutnya

Tindak Lanjut dan Evaluasi

Sumber: www.abta.org

Follow-up

MRI scanning of the brain will be done every 2-3 months and spinal MRI every 4-6 months for the first two years following surgery. The scans help determine the effectiveness of treatment, and are used to monitor for early evidence of a recurrence. Scans will be done less frequently thereafter, unless specific symptoms develop that might indicate further growth. Your doctor will determine the appropriate schedule.

Children should be carefully evaluated for long-term cognitive problems, and should

receive early aggressive learning support. Neuropsychological testing before treatment can serve as a baseline for follow up evaluations. If learning Selanjutnya